Bio Asia-Taiwan Banquet
Date: 24 July (Wednesday) 18:00-21:00 Venue: 3F, Bldg. A, CTBC Financial Park, Ballroom A
Taiwan Foundation for Rare Disorders
Ms. Ruth Kuan-Ju Chen is the Executive Director of Taiwan Foundation for Rare Disorders (TFRD) in Taipei, Taiwan.
Ms. Chen received her Master of Science in Genetics from the National Yang-Ming University of Taiwan and did a master thesis in identifying an enhancer mutation of the PAH gene in PKU patients. The thesis earned her the first place in the Master Thesis Competition of National Yang-Ming University in Taiwan.
Since graduation, Ms. Chen joined TFRD and has committed to direct patient support and counselling services. She had participated in training program for genetic counseling and completed a short-term study at the Duke University Medical Center. In 2009, Ms. Chen was certified as a Genetic Counselor by Taiwan Human Genetics Society.
Ms. Chen has dedicated herself to serve families with rare diseases for the past 18 years and has helped TFRD to set up numerous genetic counseling programs. With the support from the board of directors of TFRD, Ms. Chen is now leading the TFRD interdisciplinary team, participating in policy lobby for the rare disease community while serving patients and their families